The Fifth Annual Los Angeles Neurofibromatosis Walk will take place at 9 a.m. Saturday, May 1st at Westchester Park in honor of nine-year-old Blake Robinson.
Blake was diagnosed with neurofibromatosis (NF) at the age of 18 months when doctors found a tumor on the optic nerve in his brain. Over the past two and a half years he has undergone four brain surgeries and chemotherapy. Neurofibromatosis is a progressive disorder that causes tumors to grow on nerves throughout the body and affects more than one in every 3,000 children born in the United States.
Blake’s parents say they are working with the Children’s Tumor Foundation to raise funds and awareness for neurofibromatosis research.
“Since there is no known cure or treatment for this disorder, it is all a guessing game as to what will work,” said Kim Robinson, Blake’s mother. “There is nothing more our family wants in life than to find a cure for neurofibromatosis, so we’re taking action and asking others to join us in this cause.”
Last year more than 250 people participated in the walk, which raised more than $60,000. The walk committee is currently looking for corporate sponsors for the event to help raise more money this year.